Coping with terminal illness

When you or a loved one receive the news of a terminal illness, it’s natural to feel overwhelmed. Processing such information can be a very emotionally challenging time, and the road ahead may feel uncertain.

This guide aims to provide support during this difficult time, offering compassionate advice on managing your emotions, discussing end-of-life topics, and making important decisions.

Processing your feelings

Coming to terms with a terminal illness is deeply personal and can evoke a complex mix of emotions. Whether it’s shock, fear, sadness, or confusion, these feelings are all completely valid. You may find yourself moving between different stages of acceptance as you try to process what’s happening.

It's important to acknowledge your emotions without judgement. Sometimes, the first step in coping is simply recognising what you’re feeling and sitting with it. Everyone reacts differently — some may go into shock and need time to fully absorb the news, some may cry or feel numb, while others may feel the need to talk, or take immediate action.

There is no right or wrong way to react when your doctor breaks the news. It’s important to allow yourself the space and time to feel what you need to feel, whether that be alone, or with your family, friends and loved ones.

For more detailed guidance, you can explore Cancer Research UK’s advice on processing the initial shock of receiving a terminal diagnosis.

Coping with anticipatory grief

Anticipatory grief is the deep sense of loss you or your loved ones may feel, knowing that death is approaching.

After the diagnosis of a serious illness, both the individual and their loved ones often begin grieving long before the illness becomes terminal.

The loss of independence, a sense of security, diminished abilities, and altered hopes for the future are just a few of the painful realities that many must confront.

Whether you're dealing with your own terminal diagnosis or the illness of someone close, this form of grief can bring up a range of emotions, including:

Grief

  • Anxiety: Worry about what lies ahead and the uncertainty of the future.
  • Anger: Feeling frustrated or angry about your diagnosis, or at the thought of losing someone dear.
  • Depression: A deep sadness, or sense of helplessness, that can feel overwhelming at times.
  • Denial: Being unable to accept the reality of the diagnosis, or believing that there must be something that can be done to cure the illness.

It's important to understand that the emotions associated with anticipatory grief are a normal part of the process, and to allow yourself to experience these emotions without guilt or shame.

Sharing how you feel with others who are also affected can bring comfort and create a sense of unity during a difficult time. You can also find more resources on anticipating a death and ways to cope with these feelings.

Talking about death

Talking about death can be difficult, but it’s a crucial part of coping with terminal illness. It can help you, your loved ones, and even healthcare professionals better understand your wishes and provide the necessary support. Open conversations about death, however painful, can foster understanding and emotional closeness.

Talking with family and friends

Having honest discussions with your family and friends is essential. These conversations offer an opportunity to express your emotions, share memories, and talk about your wishes. You may want to discuss:

  • Your feelings and fears about the future.
  • Any final wishes or preferences for end-of-life care.
  • Plans for a funeral, whether it’s something simple or traditional.

Introducing the idea of funeral plans can be a helpful way to relieve some of the burden from your loved ones. This could include a discussion about the kind of farewell you want, from a cremation to a more traditional service. Speaking about these things in advance ensures that your wishes are understood and respected, and that your loved ones are protected from the stress of arranging a funeral later down the line.

Talking with family and friends

Connecting with others who are going through a similar experience can be incredibly healing. Support groups provide a safe space to share your feelings, receive comfort, and learn from others. Many people find strength in the solidarity that comes from speaking to those who truly understand what they’re going through.

There are numerous support groups available across the UK, both in person and online. Whether you’re looking for emotional support or advice, these communities can help you feel less alone.

  • Marie Curie — Providing free support over the phone in over 200 languages, and via webchat, to anyone with an illness they're likely to die from and those close to them.
  • MacMillan, In Your Area — In Your Area is an online directory of cancer support services, self-help and support groups, and fundraising events across the UK.
  • Maggie’s — Offers group support for people with any type of cancer and their friends and families: before, during or after treatment.

Speaking to a counsellor

Sometimes, professional help is needed to navigate the complex emotions of terminal illness. A trained counsellor can offer a non-judgmental space to express your thoughts and feelings, helping you process your emotions in a healthy way.

Counselling can be particularly beneficial for those struggling with anxiety, depression, or grief, to help you manage your emotions safely.

You may consider reaching out to the British Association for Counselling and Psychotherapy (UK) or COSCA (Scotland), both of which offer access to trained professionals who specialise in grief and end-of-life counselling.

Counselling

Making end-of-life decisions

As difficult as it may be, making decisions about the end of life can provide a sense of control and comfort. It ensures that your preferences are respected and that your loved ones are aware of your wishes.

Arranging hospice care

Hospice care provides compassionate support for individuals nearing the end of life, focusing on comfort rather than cure. If this is something you are considering, hospice care teams can offer medical, emotional, and spiritual care for both you and your family, helping to ease the journey ahead.

According to the NHS website, hospice care is provided free of charge, funded through a combination of NHS support and public donations. While you can reach out to a hospice directly, the team will typically request a referral from your doctor or nurse as well.

Hospice

Planning your funeral

One of the most significant end-of-life decisions is planning your funeral. By making these arrangements in advance, you can ensure your wishes are met while easing the burden on your loved ones. There are a number of viable options, but, first, you may want to consider:

  • Cremation vs. burial: Decide whether you would prefer to be cremated or buried. If simplicity and affordability are priorities, you might explore direct cremation, a straightforward option without the need for a traditional ceremony.
  • Traditional vs. simple: Think about the style of the service. Would you like a formal gathering with friends and family, or something more private and understated?

Funeral plans can also help cover the financial costs of a funeral, providing peace of mind that your loved ones won’t face unexpected expenses at such a difficult time.

At Distinct Cremations, our affordable funeral plans cover a range of services, including collection, care at the mortuary, cremation (with all fees included), a coffin, a simple ashes container, and more.

The most economical option is our direct cremation plan, though we also offer budget-friendly plans for those who prefer an attended cremation with an unrestricted number of attendees.

You can choose to pay in full, with a debit card, credit card, or cheque. Alternatively, flexible monthly payment options are available over 1, 5, or 10 years, providing an affordable solution if paying the full amount upfront isn’t manageable.

Addressing financial matters

Sorting out financial matters is another essential aspect of preparing for the future. This may involve organising your assets, settling any outstanding debts, or making decisions about how your estate will be handled after your passing.

Speaking with a financial advisor can help you get these affairs in order and ensure your loved ones are taken care of for years to come.

Getting your documents in order

Having all your important documents in one place can make it easier for your loved ones to manage after your passing. These documents might include your:

Make sure to communicate where these documents are stored, so that they can be accessed when needed. You can find further advice on funeral documents here with Distinct Cremations.

Other helpful articles

Dealing with a terminal illness is one of the most challenging experiences a person can face. While it’s not easy, taking steps to process your emotions, speak openly with loved ones, and plan for the future can bring a sense of peace during this difficult time.

Remember, you don’t have to face it alone — support is available to help you every step of the way. Request a free guide to our funeral services for more information, or contact one of our friendly team.

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What our customers say about us

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Anonymous, on Feefo 10 Mar 2025
Bought a policy online which was quick and simple to do and then received a courtesy call from Distinct Cremations to make sure that I was happy with my purchase. Very professional.
Debbie Burchell, on Feefo 8 Mar 2025
I had no idea where to go when my mum passed away. We had discussed that she wanted to be cremated, but that was it. My partner saw Distinct Cremations on our local Crematorium website, as they work with them. I didn't want loads of fuss, or to go into an office. Just a lovely personal service. Distinct Cremations went above and beyond in every area. I picked my options on the website, nice and simple, to get an idea of my quote. Then had a lovely discussion on the phone with Dan. We talked about all the options I wanted and he was so thougthful, sincere and genuinely supportive, I was really nicely surprised. It was really simple to put the order through and to pay for. Since then I have had a singluar, regular contact called Grace who looked after me every step of the way. The professionalism and compassion of the staff at Distinct Cremations is second to none. I was informed at every step with what was going to happen. They regularly checked in with me, to make sure I was doing ok. The service and celebrant Carol Porter was incredible. Everything happened exactly as planned. I couldn't have wanted anything better. The ashes were delivered to me at home, I had the standard box for them to be delivered in. The gentleman who delivered them was really kind and compassionate also. They came in a really nice blue box. Thank you for making one of the worst times of my life as easy as it could have been. I would highly recommend Distinct Cremations to everyone. I would definitely use them again myself.
Yvette Glover, on Feefo 7 Mar 2025
I am so grateful to the two people who looked after me during the process of organising the cremation. They were really caring and nothing seemed too much trouble. A huge thank you to Daniel and especially Maxine.
Anonymous, on Feefo 7 Mar 2025
I purchased a cremation plan for my wife and myself. It was very easy to do and so far everything is fine. Just hope I don"t need to use it for a while. Bob
David Peter Lee, on Feefo 6 Mar 2025
Excellent company and great customer service and follow up.
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Godfrey Peter Tucker, on Feefo 27 Feb 2025
The telephone service personnel were very friendly and helpful, not at all pushy. Would recommend the service, as every thing went to plan.
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the staff were very helpfull
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